Supported Decision Making (SDM)
Supported decision making (SDM) is one alternative to guardianship. It a tool that allows people with disabilities to make their own decisions and build their own lives with support from a team of people they choose. A person using SDM can select trusted advisors, such as friends, family members, or professionals, to serve as supporters, who agree to help the person with a disability understand, consider, and communicate decisions, giving the person with a disability the tools to make her own, informed, decisions.
Where to Start?
- When Do I Want Support? (ACLU)
- Guardianship Laws in Indiana
- Supported Decision Making in Indiana (Governor’s Council for People with Disabilities)
- Exploring Decision-Making Supports (LifeCourse Tool)
- Top 7 Things to Know About Supported Decision-Making (Indiana Disability Rights Network)
- Supported Decision-Making: Protecting Rights, Ensuring Choices (Jonathan Martinis)
- Making Healthcare Choices: Perspectives of People with Disabilities
- Supported Decision-Making: 5 Reasons to Re-Think Guardianship
- Supported Decision-Making: What Supported Decision-Making is and Why It Matters
- Supported Decision Making, an Alternative to Conservatorships
- What’s Next: A Self-Advocate’s Guided Tour through Transition for Parents and Other Supporters
Sample Supported Decision-Making Agreements:
- ACLU Supported Decision-Making Agreement
- Autistic Self Advocacy Network Supported Decision-Making Agreement
- Nonotuck Resource Associates and Center for Public Representation Supported Decision-Making Agreement
- Authorizations to Share Medical and Educational Records (California-based)
Services of Entitlement
Select a Category:
It may be challenging for families, caregivers, individuals with ASD, and others to navigate support systems and services. In order to best support individuals, families, providers, and communities statewide as they learn to navigate life with ASD or a related disability, HANDS in Autism© together with the NeuroDiagnostic Institute and IIACC partners reached out to organizations and asked directors and professionals to share about the noted service or program they oversee or facilitate in order to support awareness of, access to, advocacy for, and/or navigation within as individuals, families, and teams statewide are connected. Hear what they had to say below.
Category: Advocacy
IN*SOURCE
Special Education Parent Support
Indiana 211
Connecting you with professionals in mental health & addiction, health care, housing assistance, tax assistance, food & clothing, education & employment, and more
Category: Education
The Indiana Education Scholarship Account Program (INESA)
INESA, managed by the state treasurer’s office, will allow eligible parents/guardians to establish an education scholarship account (ESA) that can be used for their child’s education expenses.
Category: evaluation
Indiana Dept. of Education and Indiana IEP Resource Center
Video Series: Simulated Intake for Parent Referral for Preschool Evaluation
Category: Savings
Indiana ABLE
INvestABLE Indiana helps individuals save, while preserving their SSI and Medicaid.
Category: Pre-ETS
Indiana Vocational Rehabilitation Services
Employment services program for Indiana students in transition (ages 14-21) and adults with disabilities
The Arc of Indiana
On oversight of delivery of Pre-Employment Transition Services
Category: Vocational Rehabilitation (VR)
Indiana VR Services by The Arc of Indiana
What to expect with VR
Indiana Vocational Rehabilitation Services
This short video describes the VR process, eligibility, and the services VR can provide if you need some help to learn new skills, find a job, or start a career.
Novel Coronavirus Resources
Every day there is new information coming out about the novel (new) coronavirus SARS-CoV-2. Some of this information is science-based and factual, while some is rumor or fiction. When looking for information, it is best to be careful and to check your sources. The following is a list of reputable sources for information on a local, national, and global level.
Share this page with your colleagues, friends and family as it will continue to be updated with new highlights as they become available.
Indiana
The IN.gov Coronavirus Hub contains links to current press releases from Governor Holcomb, as well as a dashboard containing a county-level breakdown of the number of cases, deaths, and tests being counted in Indiana.
- from IN.gov: “General questions from the public or healthcare provider inquiries about COVID-19 may be directed to the ISDH COVID-19 Call Center at the toll-free number: 877-826-0011 (8 a.m. to midnight, daily)”
Be Well Indiana: “This site is an initiative of the Indiana Division of Mental Health and Addiction (DMHA). All external links have been provided by and vetted by DMHA leadership.Information on this website is up to date and subject to change.”
Be Well Crisis Hotline (Indiana 2-1-1): “Counselors and resources now available 24/7 at Indiana 211 – The Indiana Family and Social Services Administration today announced the launch of the Be Well Crisis Helpline, a confidential resource available through Indiana 211 that will allow Hoosiers to call and speak with a trained counselor 24/7. The free Be Well Crisis Helpline was established by FSSA’s Division of Mental Health and Addiction in direct response to the elevated levels of stress and anxiety Hoosiers are experiencing due to the COVID-19 pandemic.”
- Indiana Department of Education (IDOE)
- Indiana Family & Social Services Administration (FSSA)
- FSSA guidance for various programs and stakeholders regarding COVID-19
- COVID-19 (coronavirus) guidance for DDRS stakeholders
- Food Assistance Availability Map
- Indiana Medicaid allows telemedicine and telephone options for most health care and mental health interactions
- Goal-directed ways to spend time at home during the COVID-19 pandemic.
- Integrated Supports for Preparedness
- Indiana Division of Disabilities and Rehabilitative Services
- COVID-19 Visual Communication Card for the Deaf and Hard of Hearing population (mobile) (Print)
- Temporary Policy Changes Due to Covid 19 FAQ
- COVID-19 (coronavirus) guidance for DDRS stakeholders
United States
The Centers For Disease Control (CDC) has a Coronavirus page which branches out into guidance for different situations and answers questions about staying safe and healthy.
- Autism Society (of America)
- The ARC of United States
- CDC
- Center for Inclusive Design and Innovation, Georgia Tech
- Department of Education (DOE)
- Organization for autism research (OAR)
- Ohio State University, Nisonger Center – COVID-19 Resources
- UNC Frank Porter Graham Child Development Institute Autism Team
- May Institute – Expert Columns on Coronavirus Topics (e.g. “Adults with ASD Coping with COVID-19“)
- National Center on Intensive Intervention:
- Supporting Students with Intensive Needs during COVID-19
- Returning to School: Considerations for Students with the Most Intensive Behavioral Needs.
- Job Accommodations Network (JAN)
- IES:REL (Regional Educational Laboratories)
The World
The World Health Organization (WHO) Coronavirus disease (COVID-19) Pandemic page is compiling information about the disease from across the globe to better understand the situation.
Medical Journals & Articles
- New England Journal of Medicine
Resources for Individuals with ASD and More
- HANDS in Autism
- Social Narrative: The Coronavirus and Staying Healthy
- Visual Schedule: Washing Hands
- Social Narrative: Coronavirus and Wearing Masks
- Social Narrative: Coronavirus and Public Safety Rules
- Family Voices
- Easter Seals DuPage & Fox Valley
Professional Learning Community
A professional learning community (PLC) is a network of groups that enable sharing and integration of diverse knowledge, experiences, perspectives, attitudes and practices. This networking enhances creative thinking, resource development and sharing, idea generation, and program improvement. Shared passion, interest, understanding and work towards common goals fosters greater inclusion, diversity, and capacity for implementation than working in isolation.
While members will all bring varying levels of knowledge and experience, the value of the PLC is a safe learning environment, thriving on diversity and inclusion, in which all contribute, grow and learn. In a productive PLC, members share common interests, engage in joint activities and discussions, and exchange, critically evaluate and reflect on information. They further develop and share resources to support and act on shared goals by developing new knowledge and tools for building capacity through dissemination and implementation leading to meaningful outcomes and progress.
PLCs are flexible, dynamic, and inclusive. They embrace learning. As a result they can create a change within an organization or larger community through:
- New opportunities through sharing and valuing multiple perspectives
- New solutions as a result of the inclusive environment that fosters inquiry, innovation and knowledge generation
- Ongoing support of members to help develop capacity, innovation, risk taking, and community transformation as well as connect people, ideas, and actions towards meaningful progress and outcomes for individuals and families.
To access the Community Site:
- Submit the request to join (above)
- Create an IU guest account at https://ams.iu.edu/guests/GuestHome.aspx
- Send an email to hands@iupui.edu with the email address used for the account.
- Once added to the site, you will receive an automatic email invitation
Community Norms
We operate around the following governance principles:
- participation
- transparency
- responsiveness
- consensus orientation
- equity and inclusiveness
- effectiveness and efficiency
- accountability, and
- rules of engagement.
As part of the PLC:
- Be open to all with an interest and who abide by community norms
- Encourage the ongoing education of members and the deepening of expertise among members